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BIA calls on NICE to update evidence on rare disease medicines

BIA calls on NICE to update evidence on rare disease medicines

New research has found that the public believes a new approach should be adopted for making funding decisions about treatments for rare diseases. The report ‘Rare insights: examining the social values of treating rare diseases’, was commissioned by the UK BioIndustry Association’s (BIA) Rare Disease Industry Group (RDIG).

20 Apr 2023
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Government publishes England’s rare diseases priorities for 2023

Government publishes England’s rare diseases priorities for 2023

The UK government has published a report outlining progress on the Rare Disease Action Plan 2022, as well as details of the priorities of the Rare Disease Framework for 2023.

6 Mar 2023
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Amgen strengthens rare disease drug portfolio with purchase of Horizon

Amgen strengthens rare disease drug portfolio with purchase of Horizon

A deal valued at $27.8 billion has been struck between Amgen and Horizon Therapeutics, wherein Amgen will buy the orphan drug manufacturer.

22 Dec 2022
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ATMPs for rare diseases a priority for Innovative Health Initiative funding

ATMPs for rare diseases a priority for Innovative Health Initiative funding

Research themes under consideration for the next round of Innovative Health Initiative (IHI) funding include Topic 4: Strengthening the European translational research ecosystem for advanced therapy medicinal products (ATMPs) for rare diseases.

5 Dec 2022
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